Adding my two cents to the mega mesh mess surrounding transvaginal mesh complications…

You seriously have to go ALL the way to California for surgery?

QuestionFor the folks who can’t believe I have to fly all the way to California for surgery… I just heard of a woman and her husband who sold their rental home and bought an RV so they can drive to California (from Oklahoma) to see the same doc I’m going to (Dr. Raz). This other poor woman can not sit, so she can’t fly… and after 11 years (you heard me, ELEVEN YEARS) of surgeries and deteriorating health…. this was the only way they could think of to get her some help.

Flying2Sounds unbelievable, right? People can’t even believe me when I tell them I’m flying from NY to CA. Can you imagine what this other couple has been through? Well, believe it. Can you say “desperate”? Yes, “desperate” is a good word to describe women who have complications from mesh. Desperate because the doctors you once trusted, won’t or can’t help you. Desperate, because you get bounced from doctor to doctor, and told one wrong thing after another while your health gets worse and worse… along with your financial situation, and quality of life.

Now, this other woman’s case may be extreme… and maybe my case is also not the norm… and maybe for many mesh is NOT a problem.  That does not change the fact that there ARE many women that DO have complications… serious complications… life altering complications with no easy answers for treatment.

Even the FDA warns that complications are “NOT RARE”.  Something no-one mentioned to me before my surgery that I wish they had.

Another thing no one tells you is just how difficult, if not impossible, it will be to get any real help if you DO have those complications. All most doctors offer is denial… or ignorance on the matter. If/when you finally find a doctor who will correctly diagnose that the mesh is causing your problems, they usually only offer to do partial removals that often wind up making things worse, bringing on even more surgeries and damage. impossible They often say it’s impossible to remove the mesh, that it will only cause more damage.  What they SHOULD say, is that it is impossible for THEM to remove it, because there are only a handful of experienced doctors doing full mesh removals.   Specialists, like Dr. Raz, that most other doctors will not refer you to when you present with complications.  Women wind up being the guinea pigs for a product that never should have been put on the market in the first place, and then again for partial mesh removal procedures by inexperienced doctors.  Lawyers blame the manufacturers, or the FDA. Meanwhile, many doctors just keep putting mesh into women left and right.

It still boggles my brain. How is this possible? Such major problems, from such a minor surgery? Yes, all surgeries have risks… but, this is ridiculous. Especially when there are alternatives (usually not offered), like using your own tissues, etc., and the seriousness of the risks are not explained. The fact that it is is all so avoidable is what makes it so horrific to me.

If you’re still reading – thanks for reading… This isn’t a topic I’m sure most really want to hear about.. or something I really like talking about, but I feel like I need to do whatever I can to warn others, and just get the word out about mesh complications and mesh removal surgery.

Update 4-19-13:
I not only went to UCLA, but I went three times.  Once for my consult in August 2012.  Once for my pre-op tests and actual mesh removal surgery in December.  Once again for a follow-up in March.  While traveling from NY to CA for surgery was not ideal or easy, I would do it all again.  Dr. Raz is an amazing surgeon, and I still feel like this was what I needed to do.  It is a shame there are not better options closer to home.   It is also a shame they are even still using mesh and causing these kinds of problems.  No, that is more like a crime than a shame.
Click here for more information and pictures from my trip to UCLA

 

==============Related Posts================

 

Tagged as: , , , , , , , , , , ,

Categorised in: Doctors Who Don't Use Mesh, Mesh Complications

5 Responses »

  1. Reblogged this on mesh ministry and commented:
    Thank you for your work. T.

    Like

  2. Deb~ you have an amazing way with words. It was your story dated
    2/2012 that I sent to my daughters & sisters hoping they would “get it” and perhaps understand through someone else’s eyes what mesh was doing to me. Thank you for caring enough to do what you do to help others. Blessings~

    Like

    • Thank you, Barb. If anything I’ve shared has been able to help you, or anyone, then I feel like having this blog is worth it. I know it is not easy for others to understand what is happening… it’s even difficult for US, the ones going through it, to grasp. And, we are mostly so conditioned to just believe whatever our doctor tells us. That just doesn’t always work for people suffering from mesh complications because there is so much misinformation out there… or just lack there of. So, unless you already have a doctor who is very knowledgeable on mesh complications (and unfortunately, that is not usually the case), then you really do find yourself needing to travel or make some hard decisions for treatment that is not always readily available.

      Like

  3. Christine Ransome suffering from mesh polypropylene a randomized controlled comparion polypropylene mesh surgery site specific surgery in the treatment cystocele enterocel and rectum rectocele pelvic floor dysfunction disease impetigo dysfunction inappropriate syndrome chronic pain syndrome benign with obstructive sleep apnea osteoporosis osteoarthritis abdominal compartment with trochanteric bursitis of both hips replacement dropped bladder interactions analysis device suture with mesh devices Dr baker a dharma just india synthetic mesh related complications in pelvis floor reconstructive orthopedic spine surgery march 8 2011 at University of Pennsylvania penn medicine Presbyterian medical center philadelphia Pennsylvania cardiology Dr katrina Armstrong Boston Massachusetts General Hospital Medical Center primary care physician and urogynecologic reconstructive pelvic surgery at penn medicine Dr Heidi harvie MD mba msce urogynecology reconstructive pelvic surgery at penn medicine Dr David schwartz patients with interstitial cystitis bladder pain syndrome benign with obstructive sleep apnea osteoporosis osteoarthritis abdominal compartment with trochanteric bursitis of both hips replacement trochanteric Christine Ransome mesh conventional vaginal repair in recurrence prolapse randomized controlled trial with Medicare insurance health partners randomized trial comparing anatomical and complications related incontinence society terminology and classifications complications related directly to the insertion of prosthesis hip cement ballplubic records mesh implant tapes grafts urogynecologic pelvic floor dysfunction Dr swift Dr Freeman Dr j india at University of Pennsylvania Presbyterian medical center philadelphia Pennsylvania cardiology Dr boon Milan in verveSt 20)11 2011 March trochanteric guide mesh versus conventional prolapse hysterectomy removal randomized controlled trial Dr hinoul nieminen outcome after anterior vaginal wall repair with mesh a randomized controlled trial 3 year follow up with some doctors who would not to preformed the procedure with heart failure benign brain tumor syndrome bloom syndrome benign with obstructive sleep apnea osteoporosis osteoarthritis abdominal compartment with trochanteric bursitis of both hips replacement mini arc solitary incision sling and bard exponent pelvisoft pelvic ace and pelvicolive transvaginal net surgical procedures hysterectomy urethral sing possible cystocele and rectocele repair at the same damage time managing the outlet after failed retropublic transobturator or single incision sling sling incision in cases if recurrence suit can prove difficult and has been wrong with disease thyroid problem tissue and muscles nerve damage tissue of poison come out of the vagina Christine Ransome suffering everyday for five years have been extremely pain excessive amounts of scar tissue ex ray in Pelemen Hospital blvd 39th street philadelphia Pennsylvania 2156624000 University of Pennsylvania penn medicine cooper internal medicine market Street philadelphia Pennsylvania 19104 Christine Ransome suffering from mid urethral sling in female incontinence incontinence surgery midurethral slings stress urinary incontinence tension free vaginal it failure surgery cause to uses growth-oriented can’t remember nothing appears to have no equally effective outcomes in a least short term when compared with tvt although evaluation of the brain tumor stoke abnormal has led to less invasive procedures with decrease post open pain and not reduce reconstructive recovery for the time durning durablity of effective solutions for surgical procedures more equality more more quality

    Like

Trackbacks

  1. Partial vs. Full Mesh Removal Surgery - Transvaginal Mesh

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Appreciated Visits:

  • 202,258 hits
%d bloggers like this: