I know that not everyone is on Facebook, but for those of you that are – please know that I also have a public Facebook Page for Mesh Me Not at: www.facebook.com/MeshMeNot
Sometimes, I post to that page more frequently than this blog – simply because it’s easier there to share and make quick posts. Please “like” the page, if you want to follow any updates from me there. It is public, like this blog, so keep that in mind if commenting.
I do like to have people comment on this blog, and I try to respond to comments as fast as I can, however, I am not always as available as I would like to be. I am sort of a one man show, and often life intervenes. But, please know that there are a TON of other resources and places to find answers and support too.
If you are on Facebook – please also consider joining the larger, Public FB Group:
MESH PROBLEMS: www.facebook.com/groups/meshproblems
This group is run by other mesh injured people (not myself), and is open to those suffering from mesh, their families, and even medical professionals, etc. If you are suffering from mesh, please join this in addition to any others, so that we can have a larger online presence.
Also, if looking for answers/support, please consider joining one (or more) of the other larger “closed” support groups, like:
- the WOMEN’s POPSUI Group (closed), where you can also ask questions, etc: www.facebook.com/groups/317477065098820
- or for those with hernia mesh, the FIGHTERS and SURVIVORS Group (closed), may be more up your alley: www.facebook.com/groups/111893665491196/
There are more and more groups and resources popping up. I think this is both good and bad. It’s a “good” thing, because the more people that come forward and share their stories – the more likely those who need that information are to find it. Plus, not every group or page is a good fit for everyone, so it’s nice to have options. But, it’s also “bad” that there are so many, because it goes to show that there are more and more people having problems. Which makes sense since they are still putting this crap IN people left and right. =(
Please try to also check who is running any groups, or blogs, etc. Each group in Facebook should list the “admins” for the group. If not, ask. Sometimes, lawyers are creating sites that look like support groups – when they are really nothing more than soliciting clients. Personally, I like the groups that are run by other mesh-injured people, like the Mesh Problems Group. Sometimes, the larger groups can be overwhelming – but, they can also be great to get support and feedback on questions. There’s a “search” tool at the top of any FB Groups – allowing you to search past topics. Most admins really work hard to keep drama, and trouble at bay – but, inevitably, it can creep in. Just keep in mind which groups are “Public”, vs “Closed”, and to take things with a grain of salt, etc. Remember that they are there to help offer support, not stress you out more. So, if you are feeling too stressed – take a step back, or break from them.
Please see this document for a listing of some of the groups and resources: https://www.facebook.com/notes/mesh-me-not/links-to-resources-support-groups-and-information-regarding-surgical-mesh-compli/299518930182658
There is even a link there to find other groups… and more are also listed on the bottom of this blog as well.
Keep asking questions… and, keep sharing information!