UPDATE: I am not active on this blog anymore. I am sorry, but I had to take a step back to focus on my own health and family’s health. I am doing well, all things considered, but I just couldn’t keep up with this. I do try to check in and may post periodically. I leave this blog up with the hope that it may still serve as a resource for anyone searching for answers.
If you are thinking of getting a mesh implant for any reason – know that doctors are STILL implanting the same type of devices that are causing all these problems. They are NOT off the market. There may be newer ones – but, if they are made out of polypropylene, they have the same potential to cause the major complications you are hearing about in lawsuits, etc.
SEE: https://meshmenot.wordpress.com/2015/05/31/are-you-a-good-mesh-or-a-bad-mesh/
If you are dealing with mesh complications and looking for help – there are many other support groups now for those dealing with mesh complications. Please see this post & THE LINKS AT THE END OF IT to more resources and groups: https://meshmenot.wordpress.com/2015/05/06/finding-the-right-doctor-for-surgical-mesh-complications
There are even more groups and resources now than since that list was created. I think this is both good and bad. It’s a “good” thing, because the more people that come forward and share their stories – the more likely those who need that information are to find it. Plus, not every group or page is a good fit for everyone, so it’s nice to have options. But, it’s also “bad” that there are so many, because it goes to show that there are more and more people having problems. Which makes sense since they are still putting this crap IN people left and right. =(
Please try to check who is running any groups, or blogs, etc. Each group in Facebook should list the “admins” for the group. If not, ask. Sometimes, lawyers are creating sites that look like support groups – when they are really nothing more than soliciting clients. Personally, I like the groups that are run by other mesh-injured people, like the Mesh Problems Group. Sometimes, the larger groups can be overwhelming – but, they can also be great to get support and feedback on questions. There’s a “search” tool at the top of any FB Groups – allowing you to search past topics. Most admins really work hard to keep drama, and trouble at bay – but, inevitably, it can creep in. Just keep in mind which groups are “Public”, vs “Closed”, and to take things with a grain of salt, etc. Remember that they are there to help offer support, not stress you out more. So, if you are feeling too stressed – take a step back, or break from them.
Keep asking questions… and, keep sharing information!
Mesh Me Not 
Any attempt to get this out to the medical community and anyone involved in this scandal, is appreciated. You are helping so many, Janis, and some day it will pay off – sad all of us have to suffer so much because of negligence and Greed, but you’ll make a difference because you work so hard and care so much.
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Thanks…. My name is Deb…. but, I think I know what Janis you are talking about, and she is also doing her best to get the word out. Take care. ❤ 🙂
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I do not know how to proceed with diagnosing that my bowel complications are from implanted bladder sling. I have had CT, where, of course, nothing shows up as blocking the bowel. I have had progressive problems over the last few years. Never considered that bladder sling might be problem till yesterday when I had a CT with contrast. I have left message about this with my doctor (not the urologist who implanted it). I fear not being believed or being put off as imagining the cause, because I wonder if doctors will be defensive about litigation. At this point I just want help.
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Anita,
Unfortunately, that is how many of us were treated by our doctors. As if we were making things up. It’s not right. They either have no clue, or they do not want to get involved.. or both. Regardless, it is NOT acceptable.
You really need to get to one of the few specialists that remove mesh regularly to get any real help. They will tell you the truth. Unfortunately, they are not always easy to get to – but, very worth it.
Please check out this article – and the links at the end to more resources and support groups. https://meshmenot.wordpress.com/2015/05/06/finding-the-right-doctor-for-surgical-mesh-complications/
Hang in there… and I hope you get some real help soon.
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I went to a doctor on that list of doctors that is suppose to do mesh removals Friday and was told the mesh removal operation was to hard and was not meant to be done. The mesh is permanent. Gave me a prescription for valium suppositories and suggested therapy. Please! Help! What am I suppose to do?
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Hi Collena. I’m not sure which list you mean… there are a few. Do you mean the main one in the “Mesh Problems” group? At any rate, please know that those doctors may have been reccomended by someone, but doesn’t mean the necessarily are for everyone. Opinions and experiences vary quite a bit on doctors, just as our problems and complications are often similar, yet very unique. This is why I say to ask around as much as possible about any doctors, and also talk to more than one doctor if possible. Please try to get to one of the other experts, if possible, at least for a consult.
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God bless you for everything you do. You are appreciated. Pray for you. Thanks!
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Yes the ones at duke university. I am so weak sick in pain and so scared. All of my body has been poisoned and do not have a doctor now or don’t know what to do now. My records are changed and no one will help me.
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